Sara Elizabeth (norain21) wrote in seizuredisorder,
Sara Elizabeth

I have a question.

I hope it's okay to ask questions here. I've been without insurance, and now that I ifnally have it, my appointment with my neuro isn't until 10 or so days from now. And I can't afford to go to the doctors in LA for awhile. Before, like two years ago (I suck with time) when I had insurance, I was on Keppra 750mg twice a day. I had been on loads more, but I finally got down to just that and was seizure free. I also have Lupus and Scleroderma (auto-immune diseases) and an arachnoid cyst in my left temporal lobe. I can't think of all the proper names for the seizures right now as I'm back on seizure medicine and my poor brain is quite tired and gets confused easily...and I have a horrid memory, but basically I had the kinds of seizures where I stared into space, drop stuff, or fell. I never convulsed, except for the myoclonic jerks.

Now, here recently, before I got insurance again.... I started getting an electric shock feeling in my head, mostly as I fell asleep, and right after that I'd jerk pretty bad. I was concsious though. And then, one day, I was so tired from having taken the benadryl, that I laid down in my room and I can't remember fully. I know I was thinking about getting up, but whether I tried or not, I do not know. I felt the jolt in my head and I shook for a much longer time, in my arms mostly. Lately, I've been having a lot of deja vu. I've had this before and just ignored it. I never knew that was apart of seizures until recently. I'm back on Keppra (but the generic) 250 a day. Actually, I cut the pill in half so its 125 twice a day. Anyway, does anyone else get a sense of deja vu a lot? It can range from twice a day to 10 times a day. I don't know if it's all seizures of it I'm just so stressed out and tired and my day is routine so maybe it just confuses me? IDK. I just know it hasn't gotten any better. I've stopped have the electric jolt feeling since I stopped taking benadryl, and I haven't had any myoclonic jerks at night. I mean, my arms have jerked a little upon falling asleep but I don't get that feeling in my head and I think its just normal sleep movement. I don't get that weird feeling from it.

Anyway, since I have anxiety issues, this whole deja vu being seizures is scaring me. I mean, if I'm having seizures THAT often, that certainly can't be good. Is the arachnoid cyst moving? Is the Lupus attacking my brain? Does anyone else have this problem? And I know you can't diagnose me, but do you think it's (anxiety speaking here) like a major cause for concern? That my brain is going to go kaplooey?
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