mizuki_hana2 (mizuki_hana2) wrote in seizuredisorder,
mizuki_hana2
mizuki_hana2
seizuredisorder

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Hurting

I live with a wonderful man who suffers from epileptic seizures. He has had them since he was two. We have two younger children and an older one from my previous marriage. Our youngest is his by blood and I am so scared she will go through the pain he is. he has Idiopathic seizures so we don't know where they come from ever. he has to eat right, stay dehydrated, keep his salt level up(from the Trileptol), get good sleep(may have sleep apnea), and stay unstressed(like that ever happens). Bright lights and strobing trigger them too.

Since I've been with him he has had three Tonic_clonics which scared the hell out of me. Mostly it is partial seizures he has, which are very painful and exhaust him. This leads to depression and mood swings as well as anger problems. He is on several drugs: Keppra, Lamictal, Lexapro(depression), Colonapin(mood stabilizer), and the trileptol mentioned above. He takes Excedrin Tension for the headaches that accompany the seizures.

I love him so much and plan to marry him no matter what. It just hurts that I have to watch him suffer and can do nothing but hold his hand. I have no one to talk to about this and it builds inside till I end up crying to sleep. I am always on edge waiting for the next one. Please if anyone can help me with words of advice or just a *shoulder* to cry on I would appreciate it very much.



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